Friday, March 06, 2020

Day 25 & 26


Day 25-Thursday

It was a sad day for me. Joan kept asking me to help her in a voice whisper so low I had to put my ear to her lips to hear her. Each time she said it was like a pain in my heart. I'm doing everything I can to help her but she is stuck in a place that only time MAY help. I am not even sure if that will do it now.

What will I do?

The therapist was in and worked on moving her legs in the bed. It wasn't easy. Her attention span is short and then she drifts off somewhere until I call her back to me. He tried standing her up one time and then put her back in bed. Her body just freezes before it will bend forward far enough to be upright. Sitting at the edge of the bed, I could get her to bend the upright point but standing<><<<<<<<<<<<

So, it wasn't one of the better ones. I bought her some form of Chap Stik, if you remember that, where we bought her nail files. I had to look up “dry lips” in Spanish and fit it into my sentence when I talked to the girl about what I wanted. She took me right to them, showed me the most expensive-looking one but then showed me the ones on the counter that everybody uses and far cheaper. That was amazing. She said it was her favorite also. I bought it for Joan.

Day 26-Friday

Half good and half not so good day. Let's get through the not so good first and save the "good" for last. She has been quietly moaning for the last 3 days, not out of pain or anything, just moaning quietly. Her voice is only a whisper now. She is having difficulty feeding herself after 4 or 5 bites and I end up feeding her to make sure she eats. The neurologist said her rigidity is less now but her tremors in her right hand are almost constant and in the left about every 1 1/2 minutes. She said the stroke did that. The neuro is from Slovakia.

Now for the good news. The therapist was able to get her to stand(assisted) for about 3 minutes today. She wasn't completely upright but close. It's the first time for that and we were happy, all 3 of us. There is sloooooooooooooooooow progress being made. Now I wish they could do something to help her mind but I will hold onto today's progress for now.

Dzie艅 25-czwartek


To by艂 dla mnie smutny dzie艅. Joan ci膮gle prosi艂a mnie, bym pom贸g艂 jej szeptem tak cicho, 偶e musia艂em przy艂o偶y膰 ucho do jej ust, 偶eby j膮 us艂ysze膰. Za ka偶dym razem, gdy m贸wi艂a, to by艂o jak b贸l w moim sercu. Robi臋 wszystko, co w mojej mocy, aby jej pom贸c, ale utkn臋艂a w miejscu, kt贸re MOG膭 tylko pom贸c. Nie jestem nawet pewien, czy to si臋 teraz stanie.

Co zrobi臋?

Terapeuta by艂 w 艣rodku i pracowa艂 nad poruszeniem nogami w 艂贸偶ku. To nie by艂o 艂atwe. Jej czas koncentracji jest kr贸tki, a potem odp艂ywa gdzie艣, dop贸ki nie oddzwoni臋 do mnie. Raz pr贸bowa艂 j膮 podnie艣膰, a potem po艂o偶y艂 z powrotem w 艂贸偶ku. Jej cia艂o po prostu zamarza, zanim pochyli si臋 na tyle daleko, by sta膰 prosto. Siedz膮c na skraju 艂贸偶ka, mog艂em zmusi膰 j膮 do zgi臋cia w pionie, ale stoj膮c <> <<<<<<<<<<<< zastyga.

Wi臋c to nie by艂 jeden z lepszych. Kupi艂em jej jak膮艣 form臋 Chap Stik, je艣li pami臋tacie, gdzie kupili艣my jej pilniki do paznokci. Musia艂em poszuka膰 „suchych ust” po hiszpa艅sku i dopasowa膰 je do mojego zdania, kiedy rozmawia艂em z dziewczyn膮 o tym, czego chcia艂em. Zabra艂a mnie prosto do nich, pokaza艂a mi najdro偶szy, ale potem pokaza艂a mi te na ladzie, kt贸rych wszyscy u偶ywaj膮 i s膮 znacznie ta艅sze. To by艂o niesamowite. Powiedzia艂a, 偶e ​​to tak偶e jej ulubiony. Kupi艂em to dla Joan.

Dzie艅 26-pi膮tek

Po艂owa dobrego, a po艂owa niezbyt dobrego dnia. Najpierw przejd藕my przez to, co nie tak dobre, i na koniec zachowajmy „dobre”. Przez ostatnie 3 dni cicho j臋cza艂a, nie z b贸lu ani czegokolwiek, po prostu j臋cza艂a cicho. Jej g艂os jest teraz tylko szeptem. Ona ma trudno艣ci z karmieniem si臋 po 4 lub 5 k臋sach, a ja ko艅cz臋 j膮 karmieniem, aby upewni膰 si臋, 偶e je. Neurolog powiedzia艂, 偶e jej sztywno艣膰 jest teraz mniejsza, ale jej dr偶enie w prawej r臋ce jest prawie sta艂e, a po lewej co oko艂o 1 1/2 minuty. Powiedzia艂a, 偶e ​​udar to zrobi艂. Neuro- pochodzi ze S艂owacji.

Teraz dobra wiadomo艣膰. Terapeuta by艂 w stanie zmusi膰 j膮 do wstania (asystowania) przez oko艂o 3 minuty. Nie by艂a ca艂kowicie wyprostowana, ale blisko. To pierwszy raz i byli艣my szcz臋艣liwi, wszyscy trzej. Poczyniono post臋py w sprawie sloooooooooooooooooow. Teraz chcia艂bym, 偶eby zrobili co艣, co pomog艂oby jej umys艂owi, ale na razie utrzymam dzisiejszy post臋p.